Daily living

Gadget review - food grabber

Here is another gadget - this time from Japan.

If you can't grip things (like grabbing crisps from a bowl or picking popcorn etc) because of weakness in you hands, joint mobility etc then you may be missing out on getting obese like the rest of the nation..

In the interests of equality (I have the right to eat tons of popcorn at the cinema and put on weight like everyone else, right?) this Japanese gizmo might work for you if you can operate it.

If you can't see it - think six inch stick with two pincers at one end and three at the other that pinch together when a slider button is pushed in bright yellow and black. I'd want a small electronic version of course for the complete cyber look.

The video clip commentary is in jest - but crank up the price and show it at Naidex.... sell out.


Gadget review - grab a lolly

I came across this today



Basically, you put the box in the freezer and once removed you have about 30 minutes to make your own ice lollies.

Now, I don't know about you, but I find holding a conventional ice lolly virtually impossible because of the small stick to grab onto that is flat and difficult to grasp. Result - your Magnum drips all over you or you drop the whole thing on your lap. Cue the Cornetto as the solution or one of those ice lollies in a paper tube that freezes your fingers off or shoots out of the packet as you squeeze it....

Anyway, this appealed to me because the sturdy unit means you just pour in your mix (i.e. water and juice or a recipe to make frozen yogurt or frozen smoothies) and drop one of the inserts (sticks) which has a reasonable area to grasp and is a nice round shape to make holding it a lot easier. Away with the mess of the 80's and in with some tech! Your lolly is ready in 7-9 minutes and making them yourself of course helps if you have particular dietary requirements.

It's available from firefox and Lakeland and costs around £39.99 (I never said accessible lollies were going to be cheap!)

Cashing in on impairment

app1
Today it was brought to my attention via Twitter that there was a review of a company who is selling an iPhone App to tell people with Alzheimers what apps they should use - 'for their health care needs'.

The company has a web site called Healthful Apps.

Basically, they are Apps that you pay for which list other 'useful Apps' and review them (with user reviews invited).

It's Medical Model in that their site appsforall.net tells carers about Apps so that they can improve the quality of life for those who they care about and for.

Now I appreciate that some people with Alzheimer's may not be able to choose Apps and most of the software is used as 'tools' by care works and therapeutic staff - so aiming the App at health and social care workers may be appropriate.

However, they also make Apps for other people and this is where I felt uneasy.

CHARITY_MODEL
Apps become an act of charity

I am sure that most people on dialysis can choose for themselves which Apps they might find useful - but here you will find one 'for them' called 'Dialysis Apps. It promises to be a 'gift' for those in dialysis and expresses how dialysis is a gruelling experience. Clearly it plays on the tragedy and charity model where disabled people are portrayed as pityful, needy and dependent on the 'gifts' bestowed upon them by the caring none-disabled members of society.

I was not Appy to say the least

Not only is the language quite sickening and disempowering but I had to ask myself is this another sign of cashing in on impairment? Granted it's only a couple of dollars (some individual ones for the equivalent of 59p) but there are lot's of review sites where you can find reviews for free and chat about them on disability forums etc as many people indeed do. Let's not forget the actual Apple App Store review and search functions where quite a lot of disabled people post a review from their own perspective.

The Alzheimer's App talks about Apps to calm and lift the spirit and another on Apps that improve memory.

I have heard of many people using Apps in this way and reaping the benefits - what I dislike is that these just sound so commercial. They are devoid of social model thinking, user engagement/input, empowerment etc and are clearly aimed at giving carers control of Apps they think disabled people should be using.
FED_UP_PERSON

It gets worse

The Autism App claims to be relevant for people with Down's Syndrome, MS and Traumatic Brain Injury - just to lump people together and maximise profits.

This is cashing in on impairment at it's worse.

Door Hell - unbelievable!

Door Hell - from 31st July to 7th July 2008

31 July 2006


Today the door fitters from JLC installed our new front door and side panel. It looks really nice and tomorrow they will automate it. Kent contract with JLC to do these so they are arriving tomorrow. Kevin had to take the day of work because I had a meeting at work. JLC only told us last Friday afternoon they were coming so it was rather short notice.

1 August 2006

Well, this guy arrives today and basically didn't have a clue what he was doing. He spent from early morning until the end of the working day trying to make out all was well followed by running out to his van and saying it was f**k*d up. He spent all day on the phone and reading the instruction manual.

We were having a system with a pin code panel on the outside so that my PAs can let themselves in, remote buttons for me to press to open it, and the mechanism itself. The door was pre installed with part of the mechanisms - the wrong part so the door would not lock. We had to revert to a key for the night and he said a new one would have to be put in. The window company JLC used, last night, parked a door (large door and glass) in our hallway for the engineer to pick up - only he knew nothing about it. He said he doesn't normally fit the type I was having installed and the whole thing is a mess. He is coming back on Thursday to put in the new parts.

3 August 2006

The same guy came back today armed with the new parts. He installed these but then the door was opening and the lock was activating in the open position... He said it basically is caused by the air pressure - in layman’s terms the arm mechanism that opens the door is not strong enough. Someone else will be in tomorrow to install the new arm mechanism and finish the job.

Aghhhh.

3 August 2006 - 6.30 pm

The electrician contracted from KCC arrived at 5.30 for a 15 minutes job that took an hour. He has now put in a spur (for connecting door to the mains).

Up until now we have had a mains extension leeds trailing across the hall way into the porch.

4 August 2006

Today the stronger arm was fitted by a second engineer. He showed me timing on the door like how long it could stay open etc for me to choose. At the end of the day he told me it was all fitted and working. Alas I believed him, signed his book and sent him on his merry way. Kevin later discovered:

  • The unit is still plugged into an extension lead (trailing through the hall and acting as a trip hazard) even though the fused spur was fitted by the electrician on Thursday.
  • The batteries inside the psu box are not connected hence we think we may not have emergency back up.
  • There are two holes in our new door where the wrong opener was fitted.
  • Part of the trim above the door has been cracked and where it has been cut to fit the second opener it has been
    mutilated rather than being cut neatly as it was with the first opener.
  • The sealant around the door frame has been removed and not replaced.
  • There are holes through the wall that have not been sealed.
  • The switch to hold the door open is on the wrong side of the opener so you can't reach it when the door is open. It is also
    a key switch rather that a 'normal' type (the engineer could not get the other switch to work).
  • We have been left a master remote for the locca unit but no instructions.
  • The lid to the psu box is held closed with a wood screw rather than the proper one.
There are other things wrong which I havn't gone into any great detail about ...
7 August 2006

Today Kevin is calling them and they have received an e-mail about our complaint.... we shall see what happens

24 August 2006

On Monday JLC visited to look at the problem areas and apologised profusely. Rest assured someone would be back on Tuesday to fix all the problems. So Tuesday came and yes most of it was done... until the engineer saw that the wrong key pad had been fitted to open the door from the outside... Finally on Wednesday morning (causing me to be 30 minutes late for work when the job was supposed to be done) the engineer was back and fitted the key pad. Hurrah... it is now working.

JLC also sent a bouquet of flowers to say sorry!

28 August 2006

Guess what... strange bleeping noises were heard coming from the door... on investigation this was the signal for a low battery and sure enough the back up had failed and also the door would now not lock without a manual key... JLC are coming again next week to have a look.

1 September 2006

There was an unknown error and 'Dan' the man got the door locking and disarmed the beeping noise so that next week a new unit could be fitted.....

5 September 2006

JLC were back again this morning, replaced the unit and I now have new remote switches which are my equivalent of a door key I can keep on me. Nice chap and door now works.

By 4.15 the beeping noise was back..... changing the unit hadn't worked so something else is the problem... JLC are apologising yet again.... is this going to be another bouquet of flowers.....

14 April 2007

Well - they never turned up for their 6 months check to see if the Door is working - and by hec it's got a mind of it's own.

Sometimes it doesn't let you in, then it won't let you out, then it shuts quickly so you have to run out.... you name it - every day it throws up something wrong. The battery back up isn't working and .... well we will be writing to them soon....

26 April 2007

Well - we have fixed the 'kicking you out persona' that the door took on. All it took was a bit of elbow grease (well just the grease actually) along the opener mechanism at the top... yeahhh.

One down.....

1 May 2007

Spoke to soon - the oil has not fixed the problem and it's as cranky as ever.....

14 January 2008

Well, since my last post, I think they have been here at least 4 times to try and fix the door which is as wonky as ever. It is driving my husband mad. First of all someone came, had a look and said he would order a new part. Came again, part didn't work. Said they would change the whole unit - returned some weeks later with only a replacement logic board. The problem was even worse now.

One day they said they said they would arrive at 8.30 but didn't turn up until 4!

He said 'Oh dear, I don't know what's wrong it it ' and again said they would replace the unit. That was a few weeks ago. Then an e-mail to say the part had to come from Spain and could take another 3 weeks..... and so it continues.

JLC are useless - never get a door from them.

10 February 2008

Well, the part that should have taken 3 weeks to come hasn't arrived - several weeks later - still no date as to when our wonky door will be fixed... hmmmmm.

15 February 2008

Today JLC turned up to fit in a new controlled - you will remember this as the one from Spain due weeks ago. Well the new one didn't work, the whole day was a fiasco and at one point the door developed a seizure and opened and closed in short stutters for some time! Alarms were sounding and the locking mechanism didn't work. Eventually he said he got it going - tried it many times and it did lock - but he said he knew it didn't always and there was nothing he could due as it was due to 'the door seal' and that it wasn't meant to work on a PVC door. Why is it, I asked, that this door was part of a 'door and opening system' which was put in together? Of course he had no answer for that.

Anyway, by the time Kevin got home it didn't lock - so when the door closes someone has to push it the last inch so the automatic locks bolt in. Also, the door has lost the ability to stay open e.g. when bringing shopping in, which he said was working - yet it isn't a function of the new system!!!

So, Kevin has told them once again that this is just not good enough and we await for them to return with the purchase of a 'new programmer' to make the door push with a greater force and close on its own like it is supposed to. So.... that would be the programmer they brought with them on an earlier visit which they now say they have to order as they have never had one....

to be continued...

03 March 2008

Turned up again today and fitted a second box next to the first one. Why - to make up for what box one should do if it functioned correctly.

They were also supposed to use a programmed to tell the door to close with the correct amount of force to actually shut - He brought the wrong connecter... I guess they will be back and we will be onto part 17...

02 June 2008

Today we told JLC that the door doesn’t reliably close every time. When going out we still have to wait until the door closes to be sure that our house is secure. Kevin and I are very unhappy with the level of service we have received from JLC Automation Ltd.

We feel that we have given them every opportunity to rectify the problem. However, after eighteen visits from their engineers and nearly two years of worry and hassle we have decided that enough is enough. We feel that this shows their company is obviously incapable of providing us with a reliable door opening/closing system.

 
Because of this, we have been forced to look elsewhere for a system that will work reliably and close, and lock, the front door consistently and securely. We are shortly going to have their door opener and controls removed and replaced at considerable expense to ourselves.

Obviously we are very unhappy that we are being forced to do this, but we just want this saga of incompetence and poor workmanship to come to an end once and for all.   We will certainly not be recommending this company to other customers looking for such a system and are saddened that other disabled people and their families will have no other option if reliant on NHS/Social Care provision that contract with JLC.

07July 2008

Yahoo

This week marked a momentous occassions - the JLC parts for the automatic door were ripped out or modified by the new company.

What a difference. Polite and competent engineers, a door that works and several features my hubby is dancing around about in terms of functionality.

The end of an 18 part saga that started back in July 2006 we feel is finally over.

Too pee or not to pee... that indeed is the question

During my training I often talk about the most important things in my life that give me personal choice and freedom. It fits nicely into the how Direct Payments could be used more flexibly and demonstrates rights and freedoms disabled people aspire to.

My number one thing in life is the toilet - and to hear the full story you will need to sign up to a course! So, of critical importance was to make our own bathroom accessible (cue clever hubby in the DIY field). That was in about 2004 and we are still completing it! Anyway, here is the story so far because I know others have written to me about the toilet in particular - so I have moved it onto the web again.
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Talking about gadgets, the best invention in my bathroom has to be the vertical toilet riser.

Now you see, for all us none mobile sorts the biggest cause of incontinence is inaccessible toilets. This is a complete bug bear because the amount of thought that goes into designing accessible toilets is equivalent to the intellectual capacity of a goldfish.

Then if you can get into the room - there is the question - can I get on and off. Anyway, at home we have specifically designed our bathroom around easy access for me personally, visual appearance and use of gadgetry to make life easier.

bath1
In the beginning...

This was our layout to start with.

1) I need to transfer to my left so the toilet is the wrong way round.
2) Not enough room for hubby/PA to lift and transfer.
3) I need quite a low toilet - lower then normal. However it is really hard to lift me up from a low surface - so some gadgetry is needed.
4) Sink not correct height, shape etc and no room at the side for PA/hubby to wash/dress me.
5) Flooring needed to have enough grip so PAs and myself don’t slip when transferring, but not
so grippy that I can’t slide my feet across the floor to transfer.
6) Door needs to move for access.

Our own design.

Then we have transformed and rebuilt it to a 'wet room' which will have a second door leading to the bedroom if we later install a ceiling hoist. (large brown door on right side).
bath4

New features:

1) level entry shower i.e. now a wet room.
2) Door now in middle of the room (where it was originally as the owner had wall papered over the door!
3) Huge space (including shower area) on the floor to move around.
4) Chose a sink that is free standing with nothing underneath for lots of leg room, a big space to wash my hair in the sink (in reach of shower head) and room for someone to stand at the side to wash my hair.
5) A ledge behind the sink for a foot stool - so I can balance.
6) And a unique toilet (see below) with a round, bevelled seat (essential for posture and balance). It’s from Denmark (land of fabby toilets) and features rise and fall (and looks like the Starship Enterprise.

More to follow in future days.

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The price of liberation and dignity

April 2006 Archive

The basic idea is that a product that anybody can use - but is sold in a mobility/equipment shop because it might appeal particularly to disabled people - and the cost will be doubled.

Now - here is a real life example. My task - to find an umbrella or sun parasol that will clamp to my wheelchair. The choice appears to be two 'special' ones. This most common pictured here. Now, how much to you think this would cost to buy (Its just your average umbrella with an added flexible clamp and bendy bit).
dpp_wheelchair_umbrella

Any offers of £5, £10, £20, £30, £40.....

Well, the cheapest is on e-bay for a starter bid of £13.95 (new) or you can go to a mobility supplier called Scootmart for £32.89 including VAT. Plus you seem to get blue, blue, or blue as the colour.

Just buying a tube clamp and 'normal' umbrella would cost £10-£15.

Or you can get a designer 'Storm' umbrella plus clamp for about £25! How mad is that.

Bean Bag lap tray / tv tray with floral pattern tray = 'normal shop' £1-7 on Ebay or a posh Marks and Spencer one for £12

Mobility / Equipment shop '£13.95 + for a basic one with no interesting picture.

The above items, if I bought new on Ebay would cost be around £25 incuding P&P. In a mobility shop this could have cost me 47+P&P. Even taking VAT of disability items it is still a lot of money - for a community the least likely to be able to afford it.

What a rip off.